Because children shouldn't have to die of ALS!!!
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How does anyone sleep at night knowing babies & children age 25 and under are #DyingWaiting and #DiedWaiting of juvenile ALS? They deserve to have trial medications for their own sake and they make them feel like only adults deserve to participate. It is unethical to let children die and we must do everything in our ability to support their groundbreaking research & development, cures, and ultimately their historical full recovery. Be the angels you wish for every day. ✨
Work is needed to be done to get access to treatments and research for more treatments and ultimately cures for Juvenile ALS. None of us should be standing by with idle hands. Time is precious. The children are counting on us. 💯❤