We are a nonprofit because children shouldn't have to die of ALS and rare diseases!!! Advocacy for rare childhood diseases to be cured should be top priority!!! What if it was YOUR child?!💯
We are a nonprofit because children shouldn't have to die of ALS and rare diseases!!! Advocacy for rare childhood diseases to be cured should be top priority!!! What if it was YOUR child?!💯
There's much to see here. So, take your time, look around, and learn all there is to know about us. We hope you enjoy our site and take a moment to drop us a line. There's no reason children have to die from ALS.
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How does anyone sleep at night knowing babies & children age 25 and under are #DyingWaiting and #DiedWaiting of juvenile ALS? They deserve to have trial medications for their own sake and they make them feel like only adults deserve to participate. It is unethical to let children die and we must do everything in our ability to support their groundbreaking research & development, cures, and ultimately their historical full recovery. Be the angels you wish for every day. ✨
Work is needed to be done to get access to treatments and research for more treatments and ultimately cures for Juvenile ALS. None of us should be standing by with idle hands. Time is precious. The children are counting on us. 💯❤
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