Because children shouldn't have to die of ALS!!!
We are serving the children who have rare gene disorders and diseases like juvenile ALS. We also strongly support children with autism.
We know what it's like to have a child be diagnosed with ALS. This also goes for if you are a child age 25 and under and you have been diagnosed with ALS or a rare disease. We never want you to be alone.
We are educating society about the SPTLC2 Gene Mutation and Juvenile ALS while enhancing awareness surrounding rare childhood diseases.
Our amazing team of regulars and part-time volunteers are committed to helping others. We take our convictions and turn them into action. Think you would be a good fit? Get in touch for more information!
Seeing a need for energetic, nonprofit work in this area, we formed our organization to provide sensible solutions. We've consistently grown since then, all thanks to the helping hands of this amazing community!
We focus on making the maximum positive effort for our community. Our members and volunteers provide the momentum that helps us affect change. Using data driven models, we provide solutions that make a long-lasting difference.
We are serving children, healing families and educating society; while enhancing awareness surrounding childhood rare diseases and childhood autism. ❤
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