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Information to keep you in the know.

Welcome to the information hub of Melanin Children Matter. Here, we aim to empower individuals, organizations, and communities with the knowledge and resources needed to create lasting change. Whether you're seeking guidance on rare diseases and autism, or looking to stay updated on the latest news and articles, you'll find a wealth of resources at your fingertips. Together, let's ignite meaningful conversations, foster collaboration, and pave the way for a brighter, more inclusive future.

  • Applied behavior analysis (ABA) is an evidence-based treatment to help children with autism learn new skills and stop destructive behaviors, like hurting themselves. However, there are a lot of different approaches to ABA. It is controversial because the way the therapy works and the training of the therapists can vary a lot. Learn what you should know before exploring ABA for your child.

  • Improve your understanding of Hereditary and Sensory Autonomic Neuropathy, Type 1 (HSAN-1) from this peer reviewed journal article, published in the American Journal of Human Genetics.​

  • In this peer reviewed journal article, published in Psychiatry Investigation, the authors examine the effectiveness of ABA therapy in managing symptoms of children diagnosed with autism spectrum disorder (ASD).​

  • In this peer reviewed journal article, published in the journal, Brain, you'll learn about various genetic mutations that result in a family of disorders called "Hereditary Motor Neuropathies." The article discusses prevalence and diagnostic criteria in the age of next generation genetic sequencing.​

  • If you're the parent of a child with special needs, you may be able to deduct large portions of your out-of-pocket expenses on your federal income tax return. While this article does not provide specific tax advice, you'll learn what questions to ask your tax professional to save you money.​

  • For many children with autism spectrum disorder, a laptop or tablet is not just an educational tool, it opens the door to communication. In this article, learn all of the ins and outs of obtaining funding for an iPad for a child you love with autism.​

  • The world of rare disease is expansive, with over 10,000 diagnoses that fit the criteria. What unique challenges does a rare diagnosis present for a patient and family? What resources are there to help cope and thrive in spite of a rare diagnosis? This Medline Plus page provides a number of resources to help you answer questions like these and feel empowered.

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