Join Our Mission to Create a Brighter Future for Children with Rare Diseases

7,000+ rare diseases discovered. 25 million Americans affected. Let’s make a difference together.

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Our Mission

You can help lots of people
by donating little​

At Melanin Children Matter, our mission is to raise awareness and provide support for children with SPTLC2-associated pediatric ALS and their families. We believe that every child, regardless of the rarity of their condition, deserves the chance to thrive. Through our efforts, we hope to create a world where rare diseases are better understood and managed.

Our Work

Melanin Children Matter is dedicated to funding research, providing resources and support for families, and raising awareness about rare diseases.

Our work includes:

Your support can change lives.

Join Our Mission

At Melanin Children Matter, we believe that every person can make a difference. Whether you choose to donate, volunteer, or spread the word about our organization, your support can help us create a brighter future for children with rare diseases.

Are you ready to make a difference?

Your donation can fund groundbreaking research and provide resources for families in need. Every donation, no matter the amount, makes a difference.

Donate Now


We rely on volunteers to help us with our work, including fundraising, event planning, and administrative tasks. If you have skills you’d like to share, please get in touch with us.